Alexandru Tiberiu Dan
My name is Alexandru and I am 23 years old. I am the president of the NGO “The Ambassadors of the future”. Currently, I am completing my master in Communication and Leadership in International Organizations at the University Babes Bolyai Cluj- Napoca. I am working at Radio NoRo, the voice of patients: www.radionoro.ro and volunteer for APWR and ARCrare and I volunteered and worked a few months for SCG East Europe SRL, Cluj-Napoca (Romania).
My sister has Prader Willi Syndrome and as she is older than me. I grew up knowing the challenges of people living with rare diseases in the everyday life, but I also had the opportunity from my parents to support people in need and to find resources for this activity.